The Down Syndrome Research and Treatment Foundation was founded in 2004 by a dedicated group of parents and leading scientists who are committed to finding treatments to improve learning, memory, and speech, and prevent the early onset of Alzheimer's Disease in persons with Down syndrome.
Carolyn Cronin has been the Executive Director for DSRTF since January 2013. In this position, Cronin provides vision, leadership, strategic direction and administrative oversight for the fundraising effort of the Foundation, the staff and its ongoing support of other research organizations.
An experienced non-profit executive with over twenty years of progressive experience managing and leading non-profit organizations, Cronin has a strong background in developing and cultivating relationships with individuals and organizations in support of further fundraising programs and growth initiatives.
Cronin was previously the President of the National Multiple Sclerosis Society (NMSS) for its New York City – Southern New York chapter, where she was responsible for providing leadership in all areas of chapter operations including fund development, client programs, community relations, financial management, staff development, and board partnership.
Prior to this she was the President and CEO of Accelerated Cure Project for MS. In collaboration with the Board and staff, she created a comprehensive fundraising campaign that increased revenue over 50% in less than twelve months.
She was the Executive Director for seven years at the Cystic Fibrosis Foundation in the Greater Illinois Chapter, providing overall leadership and management to create cost effective and ongoing sources of revenue, community presence, and mission enhancement for the organization while doubling the revenue during her tenure.
Ms. Cronin spent the last decade in leadership positions for non-profit organizations including Prevent Blindness America, Foundation Fighting Blindness, American Cancer Society and Maryknoll Fathers and Brothers.
A native of Peru, Indiana, Ms. Cronin attended Ball State University. She completed the CFRM at the Indiana University Center on Philanthropy and most recently was awarded a scholarship to participate in the Strategic Perspectives in Nonprofit Management Program at Harvard Business School.
Director of Philanthropy and Operations
Lori S. Morton
Lori Morton has been the Director of Philanthropy & Operations for DSRTF since February 2013. Prior to joining DSRTF, she oversaw Institutional Advancement for Boston Biomedical Research Institute (BBRI), an independent research institute with a mission to advance the frontiers of human knowledge in the biomedical sciences and to develop cures for a wide range of diseases through cutting-edge science.
Lori came to BBRI from the Accelerated Cure Project for Multiple Sclerosis where she was a Major Gifts Officer and developed and managed a portfolio of approximately 150 donors and prospects with the capacity to make commitments of $5K - $5M. In addition, she has experience with several national nonprofits based in Washington, DC as Vice President of Operations for the National Association of Corporate Directors where she was responsible for oversight of daily operations of the 3,000 member $2 million dollar budget trade association and as Chief Operating Officer of the Housing Partners Foundation which has generated $1.9 million dollars in philanthropic support for multiple charities across the United States. While under her leadership, Housing Partners was recognized with the American Society of Association Executives’ (ASAE) Diamond Award of Excellence.
Lori is a graduate of the University of Massachusetts, Amherst, Massachusetts. She is a member of the Association of Fundraising Professionals, Boston Philanthropic Advisors Roundtable and The Friday Forum. She is also a volunteer tutor with Literacy Unlimited.
Chief Scientific Officer
Michael M. Harpold, Ph.D.
Dr. Michael Harpold is Chief Scientific Officer of the DSRTF, and has served as Chair of the DSRTF Scientific Advisory Board since its inauguration in 2006. He has been involved with DSRTF since 2005, and has served as member of the Board of Directors (2006-2010) and Chief Executive Officer (2007-2010).
Dr. Harpold has more than 35 years' experience in biomedical research within both academia and the biotechnology industry. Prior to joining DSRTF, Dr. Harpold established EnkephaSys, Inc. as a consultant on research, business, and intellectual property issues for pharmaceutical and biotechnology companies. In addition, Dr. Harpold was a founding member and an executive of The Salk Institute Biotechnology/Industrial Associates, Inc. (subsequently SIBIA Neurosciences, Inc.), a biotechnology and pharmaceutical company in La Jolla, CA. There he served for 17 years as the company’s Vice President, Research through its IPO and prior to its acquisition by Merck. A distinguished molecular and cellular biologist, Dr. Harpold received his Ph.D. in molecular and developmental biology from Tulane University. He conducted postdoctoral research in molecular cell biology as a Helen Hay Whitney Fellow at The Rockefeller University in New York. Subsequently, Dr. Harpold was a faculty member in the Department of Biochemistry, USC Keck School of Medicine and Member of the Norris/USC Comprehensive Cancer Center, following which he held a senior research appointment with La Jolla Biological Laboratories of The Salk Institute. Dr. Harpold’s research has involved diverse problems in molecular biology, biotechnology, and biomedical science, including significant contributions to research in molecular signaling in the nervous system as well as drug discovery primarily focused on disorders of the nervous system. He is the author of numerous scientific research publications and his work has led to 47 issued U.S. patents as well as an extensive set of foreign patents.
Board of Directors
Amy Allison, Kansas City, Missouri
Amy Allison currently serves as the Executive Director of the Down Syndrome Guild of Greater Kansas City (DSG). DSG, founded in 1984 by a group of dedicated parents of children with Down syndrome, provides programs and services to improve the quality of life for individuals with Down syndrome and their families. DSG serves over 800 families caring for a loved one with Down syndrome in the greater Kansas City area on both sides of the state line. In addition to her work with DSG, Amy Allison serves as a member of the Board of Directors for Down Syndrome Affiliates In Action (DSAIA). In 2009, Amy’s leadership and expertise helped DSAIA organize a conference in Washington DC where more than 300 Down syndrome advocates from 35 states gathered at the U.S. capitol to lobby Capitol Hill. The purpose of this effort was to seek federal funds to help spread accurate information about prenatally diagnosed disabilities and to raise additional support for Down syndrome related causes.
Amy received a double bachelor’s degree in psychology and sociology from Brigham Young University.
Terry W. AnCel, Chicago, IL — DSRTF Board Fundraising Chair
Terry AnCel currently serves as President/CEO of Chicago-area contracting company Hayes Mechanical, a pioneer in the boiler, construction, and repair industry. With Terry at the helm, Hayes Mechanical is experiencing a steady, well-planned growth program. The company has a special loyalty to the city it has called home for now over 90 years. Out of that loyalty arises a sense of civic duty: Mr. AnCel, for example, has served as Chairman of the Martin Luther King Scholarship Dinner Committee through the Illinois Commission on Diversity and Human Relations, helping award college scholarships to Chicago public school students.Terry also serves as Chairman of Power Maintenance Construction in Bellevue, IL; Trustee of International Pension Fund for the Boilermakers in Kansas City, MO; and Director, Winfield Community Bank in Winfield, IL.
With Hayes Mechanical as the lead sponsor, Terry’s family and friends presented its sixth annual Golf Outing to benefit DSRTF in 2013. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. His youngest daughter, Christine, has been the face of the Hayes Annual Golf Outing since its inception.
Terry is married to Carol and has seven children and three grandchildren. Terry received his BA from University of Minnesota.
Ann Margaret Chrisney, Los Angeles, CA — DSRTF Board Treasurer
Ann Margaret Chrisney currently serves as the Administrative Program Coordinator in the Neurosciences division at the Beckman Research Institute at the City of Hope where she is responsible for the financial and operational administrative functions of numerous research grants including an $18M CIRM grant. Prior to joining Beckman Research Institute, Ann Margaret served as the Associate Director of Property and Support Services for the California Institute of Technology. Ann Margaret has a bachelor’s degree in economics from the University of California, Los Angeles as well as an MBA with an emphasis on finance from Loyola Marymount University.
Ann Margaret and her husband have two children, including a son who has Down syndrome.
Margie Doyle, Chicago, Illinois — DSRTF Board Secretary
Margie Doyle currently serves as Board Secretary and Community Outreach Leader for DSRTF. In her volunteer role, Margie is driving a grassroots initiative to raise awareness across the US about cognition research and the critical role of DSRTF in funding it. Margie is an accomplished speaker and presenter, and spoke at the UN for World Down Syndrome Day 2012 to educate and energize the public about the pursuit of greater independence and opportunity for people with DS. Margie has held numerous educational and fundraising events in the Chicago area to benefit DSRTF-funded research, and continues her work of building a network of volunteers to do the same in other major metropolitan areas across the US.
Margie's passion for not-for-profit work began 15 years ago with advocacy and fundraising initiatives for the Cystic Fibrosis Foundation on behalf of her nephew. She is also active in community service, working with many groups affiliated with her Chicago area school district.
Margie and her husband have five children. Her youngest son has Down syndrome.
Ryan M. Hartman, Hood River, OR
Ryan Hartman is Senior Vice President of Programs at Insitu Inc., a Boeing Company, a $450 million company, where he provides corporate leadership and strategic guidance, and holds responsibility for the organization's overall execution of its business plan and investments. He also serves on the Board of Directors for The Next Door, a not-for-profit organization focused on families and children in need, and is president of the National Industrial Defense Association – Pacific Northwest Chapter.
Ryan received a BS and an MS at Embry-Riddle Aeronautical University, with further study in aerospace engineering at Arizona State University. Ryan and his wife have a son with Down syndrome.
Todd Kinsella, Ph.D., Palo Alto, California — DSRTF Board Vice Chair
Dr. Kinsella currently serves in the position of Executive Director, Discovery Research at Rigel Pharmaceuticals, Inc. located in South San Francisco, CA. Rigel Pharmaceuticals is a clinical-stage drug development company that discovers and develops novel, small-molecule drugs for the treatment of diseases related to inflammation, metabolism and muscle dysfunction. Dr. Kinsella oversees several drug discovery efforts at Rigel, including projects focused on muscle atrophy, exercise intolerance associated with chronic disease and neurodegeneration.
Dr. Kinsella received his undergraduate degree in Molecular and Cellular Biology from the University of Arizona and earned a Ph.D. in Molecular Pharmacology from Stanford University.
Todd and his wife have five children, including a daughter who has Down syndrome.
Jane Lodato, San Francisco, California
Jane Lodato is head of marketing for SVB Financial Group. Prior to joining SVB Financial Group in 2002, Jane held positions as Chief Operating Officer of Sierra Club Productions, Senior Vice President of Marketing for Universal Studios Television, Business Development Manager at Jay Chiat of Chiat/Day New York, and Vice President of Advertising for ABC Television Network where she managed the prime time advertising division for the network. She began her marketing career at Nike.
Jane holds a bachelor’s degree in psychology from the University of Oregon.
Sohail Masood, Phar.D., Boston, Massachusetts
Dr. Sohail Masood, a registered pharmacist, is currently Chair and CEO of The Black Stone Investment Group. Previously, he was the founder and owner of Crescent Healthcare, Inc. (CHI) a home infusion and healthcare company. CHI became one of the two largest wholly owned infusion companies in California before he sold CHI to Frontenec in 2004. Another of his ventures, MAAS Medical, an infusion pump manufacturing company, was sold to Baxter Healthcare International in 2008. Sohail has been recognized with numerous awards including the Ernst & Young Entrepreneur of the Year in Healthcare award.
Sohail was awarded the Doctor of Pharmacy degree from the University of Southern California and subsequently completed his residency in hospital pharmacy in Brooklyn, New York.
Sohail and his wife have two children including a son who has Down syndrome.
Anthony Providenti, New York, New York
Anthony Providenti is Vice President - Corporate Business Development and Special Counsel at Henry Schein, Inc., a Fortune 500 healthcare company. At Henry Schein, Anthony is responsible for mergers and acquisitions and other strategic transactions that drive growth and profitability. Anthony previously served as a senior attorney in Henry Schein’s legal department. Prior to joining Henry Schein, Anthony was a senior corporate and transactional attorney with the New York office of Gibson, Dunn & Crutcher LLP, an international law firm.
Anthony received a J.D. from Fordham University School of Law where he was a Notes and Articles Editor of the Fordham Law Review, and a B.S. from the College of Business and Economics at Lehigh University.
Anthony and his wife have three children, including a son who has Down syndrome.
Sarah Wernikoff, Palo Alto, California — DSRTF Board Chair
Sarah Wernikoff has over 15 years experience in e-business and ecommerce management, marketing and management consulting. Her experience launching and managing e-businesses ranges from a small start-up to a $100MM corporate business with retail companies such as Williams-Sonoma, Timbuk2 Designs, and Tiny Prints.
Sarah received her MBA from George Washington University and her BA from Miami University of Ohio. Sarah and her husband have three children, including a daughter who has Down syndrome.
Emeritus Board Members
Patricia White Flatley, MD
Michael M. Harpold, PhD
William Mobley, MD, PhD
Roger and Dawn Kafker
Jim and Patty O’Brien White