Events


DSRTF has realized tremendous momentum over the past few years with respect to fundraising events. To date, our volunteers have held over 50 events in over 20 states from New York to North Carolina to California; including cities like Washington DC, Shreveport, LA, Los Angeles, Chicago and Mesa, AZ. Events have varied in size and theme, from family-centered events like the Romp for Research to cocktail parties, research presentations and golf outings. Some volunteers have even turned their family birthday parties into an opportunity to raise funds for DSRTF.

We owe the success of these events to those of you who have joined us to be part of the breakthrough. Please help us continue this success by organizing an event in your area. Contact us at 508.630.2177 or at dsrtf@dsrtf.org to learn more.

UPCOMING EVENTS

 

Signs of Support

March 22, 2014

Bay Area, show your Signs of Support for World Down Syndrome Day. Join Rachel Coleman and friends for a Signing Time! concert in South San Francisco on March 22, 2014.

Signing Time! is an Emmy-nominated television series with an impressive international following. This concert, like the Signing Time! Foundation, is "dedicated to making sign language fun and accessible to all children."

100% of this event's proceeds will go to DSRTF. Buy your tickets now!  If you're unable to join us in person, show your Signs of Support by helping raise funds online. Click to be part of the celebration!

321 eConference

March 22, 2014


DSRTF's Dr. Michael Harpold presents
 Down Syndrome Cognition Research: Dramatic Progress in Translating Discoveries into New Therapies during this innovative new online symposium connecting members of the Ds community in celebration of World Down Syndrome Day. Sign up now to participate in this virtual session, slated for 11:00 AM ET.

Celebrating WDSD: Believe in the Possibilities

March 22, 2014

Why is Down syndrome cognition research important? Alexander’s Angels and DSAF are holding a symposium to explore this question on Saturday, March 22. As part of the program, Celebrating WDSD: Believe in the Possibilities, DSRTF’s Michael Harpold, Rockefeller University’s Dr. Xiao-Fei Kong, and Dr. Patricia White of Research Down Syndrome (RDS) will discuss the far-reaching impact of Ds cognition research. This presentation, offered in celebration of World Down Syndrome Day, will begin at 4:30 PM at Adelphi University in Garden City, Long Island, NY. There is no charge for the symposium, but registration is required — click to RSVP.

The discussion will be followed by a reception and a benefit dance performance of NuBella Productions’ Let the Angels In. Click to purchase tickets for the reception and dance performance.

We look forward to seeing you there for a thought-provoking afternoon and an evening of movement and beauty!

Jackapalooza

April 26, 2014 

Friends will be making beautiful music together at this Chicago-area benefit to support DSRTF.  For the second year, young musicians from the Music Institute of Chicago will wow listeners at this charity concert at 5:00 PM at Wilmette Junior High School in Wilmette, IL. $15/adult and $10/child, payable at the door with cash or check only. We hope you'll join us for this evening of culture and camaraderie — and we thank the gifted students who have volunteered to perform!

Tea-21

May 2014

Stayed tuned this May for a very special event in honor of Mother’s Day…the Tea-21 Fundraiser! This unique event will empower mothers across the country to raise money for cognition research in honor of their child with Trisomy 21.  There will be multiple options to fundraise, with online, virtual tea events, traditional, in-home tea parties, a Facebook campaign, and more.  In addition, we ask mothers to contribute tea recipes for a Tea-21 Cookbook to promote the event — click for the recipe submission form.  We hope every mother will participate in some way in the Mother’s Day Tea-21 Fundraiser because we know that every mother hopes for a brighter future for her child.

Race for Research

June 16-18, 2014

The race is on! We're gearing up for our inaugural Race for Research, a three-day road rally to raise funds for Down syndrome cognition research. Set for June 16-18, 2014, the event will be helmed by our Honorary Co-Chairs, David Ragan, third-generation NASCAR driver, and his wife, Jacquelyn, as teams of friends and supporters take to the North Carolina highways, navigating their way from the green flag in Winston-Salem to the finish line at Charlotte’s NASCAR Hall of Fame.

Are you ready to help speed research towards increased opportunity and independence for people with Ds? Sign up to join us in June — and buckle up for an unforgettable ride.

Hayes Mechanical Golf Tournament

June 17, 2014

Chicago contracting company Hayes Mechanical presents its seventh annual Golf Outing to benefit DSRTF. With more than half a million dollars raised for Down syndrome cognition research so far, we look forward to another great day with friends and supporters at Chicago's Harborside Golf Club. Save the date of June 17, 2014 and watch this space for more information about this flagship fundraising event.

NY Romp for Research

October 12, 2014

It's been 10 years since DSRTF opened its doors, and we're inviting our friends and colleagues to join us in celebrating this milestone during the 9th Annual New York Romp for Research that will be held on Sunday, October 12, 2014 at Asphalt Green in New York City.  Since its founding in 2004, DSRTF has become the leading private source of funding in the US, generating more than $9.6 million to support results-driven research to improve cognition for people with Down syndrome. Be sure to save the date — and please let us know if you're interested in joining the volunteer committee, supporting the event through sponsorship, or joining us for a day of celebration. More details coming soon!   

PAST EVENTS

Hoops for Hope

March 1, 2014

Teens in central New Jersey took it to the hoop to improve the lives of those with Down syndrome. This three-on-three basketball tournament at Watchung’s Valley View School gym involved kids grades five through nine, with proceeds to benefit DSRTF. Our sincere gratitude goes to Ryan Lister, a senior at The Pingry School in Basking Ridge, NJ, who founded and organized this event — thanks, Ryan, for taking DSRTF to the top of the key!

Race for Research Kickoff and DS Cognition Research Update: Charlotte, NC

November 18, 2013

An excited local crowd joined us as we kicked off planning for June 2014's inaugural Race for Research, a three-day road rally through North Carolina to raise funds for Ds cognition research, helmed by our Honorary Chair, second-generation NASCAR driver David Ragan! Our kickoff was followed by an engaging, accessible look at recent advances in Down syndrome cognition research, including ongoing clinical trials and potential future directions. Thank you to all who attended this free program hosted by the Down Syndrome Association of Greater Charlotte — we appreciated your help in getting revved up for research!

DS Cognition Research Update: Bay Area, CA

November 2, 2013

What's happening in the world of Ds cognition research? Our audience found out from some of the foremost researchers in the field when we were joined by Drs. Craig Garner, Craig Heller, and Ahmad Salehi, all of Stanford University, for this informative, accessible presentation. Thank you to our speakers, and to all who attended.

One Extra Reason to Live, Love, and Hope

November 2, 2013

This year marks the eighth annual SoCal benefit for DSRTF. This year the Harbor City gala event offered food, refreshments, casino games, and a silent auction — we gathered to meet UCSD's Dr. William Mobley, enjoy a rare viewing of a private car collection, and win prizes, all in support of research. Our thanks to everyone who joined us, and to the event's generous hosts.

 

Funding Futures

October 26, 2013

Chicago's Goose Island Brewery was the site of this unforgettable night of fun and friendship, which featured live music, a silent auction, delicious appetizers, and, of course, cold craft beer, all in support of DSRTF. We were proud to honor Ds cognition research pioneer Dr. Roger Reeves, and to say hello to so many friends who are helping us fund futures that are made even brighter by the promise of Ds cognition research.

Romp for Research
October 13, 2013

This family fun day at New York City's Asphalt Green is one of DSRTF's most popular events. In its eighth year, the Romp offered families games, entertainment, food, friends, and camaraderie as we all came together to celebrate our loved ones and support cognition research!  Thank you to the volunteers, attendees, and donors who keep research flying high!
 

DS Cognition Research Update: Long Island, NY

October 9, 2013

Plainview, Long Island, NY was the site of this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for DSRTF.  Attendees heard directly from Dr. Harpold about DSRTF’s current research investments and the clinical trials now underway — thank you for attending!

 

A Swing for Hope

October 7, 2013

A Swing for Hope, a day on the links to benefit DSRTF, was a swinging success! Now in its fourth year, A Swing for Hope featured golf, refreshments, contests, auctions, a cocktail hour, and more. Thank you for joining us for this all-day affair to support cognition research — and for helping us drive towards our goal.

 

12th Annual DSRTF Golf Tournament

October 6, 2013

The International Golf Club & Resort in Bolton, MA was the site of this year's annual Boston-area golf outing to benefit DSRTF. In addition to an unforgettable fall day on the links, the tourney offered continental breakfast, lunch, awards, and an auction. We thank all our friends who showed up bright and early to help us roll out for research!

 

Alexander's Angels Buddy Walk 2013

October 5, 2013

Once again Alexander's Angels banded together for their annual Buddy Walk! 2013's Walk was their seventh yearly outing, with funds raised to fund local programs and services; promote Ds advocacy and awareness; and support Ds cognition research. Thank you to our friends who took us along for the walk! 

 

Team Fede: Buddy Walk 2013

October 5, 2013

Vittoria Aiello and Massimiliano Albanese laced up and headed out in honor of their daughter, Federica, and will be donating the proceeds of their Buddy Walk to DSRTF!  Thanks, Vittoria and Massimiliano — we appreciate every step you take to fund cognition research.

DS Cognition Research Update: Austin, TX

September 17, 2013

The campus of UT Austin was the setting for this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for DSRTF and Jon Pierce-Shimomura, Assistant Professor of Neurobiology at The University of Texas at Austin.  Thank you to all who attended, making the evening such a success. View presentations and pictures from this enlightening event.

NDSC Convention

July 19-21, 2013

DSRTF participated in the 41st annual convention of the National Down Syndrome Congress in Denver, CO, and hosted New Possibilities in DS Research: DSRTF Works Deliver Improved Cognition for People with DS — thanks to the many who attended our session, and all those who stopped by our booth to say hello!

Let the Angels In

June 28-30, 2013

Dancer Juliet Dolan and DSRTF friend Alexander’s Angels presented a night of music and magic to support DS cognition research — Juliet, a recent graduate from Queens College, is donating all proceeds from this production, her first, to Alexander’s Angels — her sister Jillian, who has DS, was a guest performer.  Thank you, Juliet, for this unforgettable night!

Hayes Mechanical Golf Outing

June 18, 2013

Chicago contracting company Hayes Mechanical presented its sixth annual Golf Outing to benefit DSRTF. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. We thank the entire team at Hayes for making this event such a success — and for your unflagging support of the research DSRTF funds.

Ashley Rose Golf Classic

June 10, 2013

The beautiful Bull Run Golf Club in Haymarket, VA was the setting for this tournament in honor of "awesome Ashley"! In its third year, this event included continental breakfast, complimentary beverages, and an awards dinner, as well as a silent auction, door prizes, and contests. We thank the Kannan family for another great year of supporting DS cognition research.

Down Syndrome Cognition Research Update

June 2, 2013

The campus of Stanford University was the setting for this free informational session featuring some of the researchers DSRTF supports, Dr. Craig Garner, Dr. Craig Heller, and Dr. Ahmad Salehi. We were proud to present this chance for you to hear directly from scientists in the field about their current projects and clinical trials now underway — and so pleased to meet all of you who attended. Thank you for joining us!


We Have Hope

June 1, 2013

Once again the Taylor family hosted this annual event in the Richmond, VA area in honor of their daughter, Hope.  This year friends gathered for tapas, sangria, and dancing— thank you to the Taylors for making DSRTF part of your special night! 


DS Cognition Research: A Mother's Perspective

May 31, 2013

This month our webinar gave a mother’s perspective on cognition research, featuring moms you can relate to: women who celebrate their children’s strengths, while realistically acknowledging the challenges they face.  We were honored to be joined by Down Syndrome Education International's Professor Sue Buckley. Thank you to Professor Buckley, and to everyone who attended.

Drive for Downs

May 2013

Scott LaMorte, father of six-year-old Emma, logged eight days on legendary Route 66, from Chicago to LA, running down the miles and collecting donations in support of cognition research.  We thank him for taking DSRTF along for the ride!

Jackapalooza

April 27, 2013

Friends made beautiful music together at this Chicago-area benefit to support DSRTF.  Young musicians wowed listeners at this charity concert in Wilmette, IL, in this evening of culture and camaraderie.  Our sincere thanks to the Villalobos family, all who attended, and the gifted students who generously gave their talents and time to move cognition research forward!

Webinar: Introduction to Down Syndrome Cognition Research

March 21, 2013

In this special World Down Syndrome Day event, Dr. Michael Harpold of DSRTF and Roche's Dr. Omar Khwaja introduced the basics of cognition research, discussed current research initiatives, and reported on clinical trials now underway. This session offered an informative, accessible presentation appropriate for those new to the topic, and included audience questions answered as time allowed.  View the webinar here.

Webinar: Dr. H. Craig Heller

January 29, 2013

Dr. Heller, an expert in the area of sleep and co-director of Stanford's Down Syndrome Research Center, joined us for our January webinar to discuss the roles that sleep and circadian rhythm may play in the cognitive impairment that occurs in people with DS, and described the potential of pentylenetetrazol (PTZ) to improve cognition. Watch his presentation now.

Webinar: Affiliate Roundtable

December 4, 2012

Leaders of affiliate groups around the country joined us for a roundtable discussion to offer an introduction to cognition research and DSRTF, and to give us the opportunity to hear the concerns and priorities of groups serving those with DS and their loved ones.  Our thanks to each leader who participated — we're glad you took the time to get to know us.

First Annual Funding Futures Benefit

October 27, 2012

Chicago-area friends joined us for a fun filled evening complete with delicious food, great music, refreshing Goose Island craft brews, fabulous raffle prizes and friendship. This was an event to remember, all to support DSRTF. Thank you, friends and supporters, for your hard work and high spirits!

 

Webinar: Dr. Roger Reeves

October 16, 2012

In this special Down Syndrome Awareness Month presentation, Dr. Roger Reeves of Johns Hopkins gave his perspective on the current landscape of cognition research and the challenges and possibilities that lie ahead. Did you miss this collaboration between DSRTF and the National Down Syndrome Society (NDSS)? You can watch the session here.
 

Upside of Down Charity Golf Tournament

October 8, 2012

This inaugural event in Austin, TX presented by Upside of Down offered golf, lunch, dinner, drinks, and prizes -- all to support camp scholarships for people with Down syndrome and DSRTF’s research. Thank you to our friends in Texas for making us part of this successful event.
 

Romp for Research

October 7, 2012

Our New York Romp for Research was our seventh annual outing, and a great time was had by all! This full day of family fun at NYC's world-famous Asphalt Green featured food, entertainment, and games, and an amazing opportunity to come together to celebrate our loved ones with Down syndrome. Thank you all for being part of such a memorable day.
 

Swing for Hope

October 4, 2012

Contests, an auction, a raffle, cocktails, and dinner followed this crisp fall day on the golf course in Manhasset, NY, to further the cause of research. We're so glad you could join us, and grateful for your support.
 

National Association for Down Syndrome Conference: "Lunch and Learn" session

September 29, 2012

This noontime discussion presented by DSRTF covered current exciting advances in Down syndrome reseach, including Roche's ongoing clinical trials, as part of the annual NADS conference in Rosemont, IL. Thank you for joining us.
 

11th Annual Charity Golf Tournament

September 23, 2012

Friends and supporters joined us in Bolton, MA for a day on the links to benefit research, including a patio barbecue, an awards ceremony, and an exciting charity auction. Thanks for hitting the green in support of DSRTF!

 

One Extra Reason to Live, Love, Hope

August 25, 2012

The seventh annual One Extra Reason to Live, Love, Hope gala hosted by the South Bay Down Syndrome Association was an unforgettable evening of camaraderie and commitment as friends of DSRTF gathered to share cocktails, bid on auction items, and support the groundbreaking work we do in support of people with Down syndrome. Thank you to all who made the night memorable, and who continue to help us move research forward!

 

National Down Syndrome Congress Convention

July 19-22, 2012

Each year thousands of people come together at the NDSC's annual convention to talk with experts, connect with families, and share the successes and challenges of life with Down syndrome. DSRTF was there to meet you, say hello, and spread the excitement about the promising work we support. Thanks for stopping by our booth -- see you at the convention next year!
 

Hayes Mechanical Golf Outing

June 19, 2012 

Chicago contracting company Hayes Mechanical presented its fifth annual Golf Outing to benefit DSRTF.  Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research.  Thank you, Hayes employees, families, and friends for your continuing support!

 

We Have Hope

June 2, 2012

The Taylor family celebrated their daughter Hope's many abilities and accomplishments at their annual fundraiser for DSRTF: "a party full of people coming together for this, our most precious cause." Thank you, Jill and JT Taylor!

 

May Webinar: Dr. Jon Pierce-Shimomura

May 22, 2012

We were pleased to welcome Dr. Jon Pierce-Shimomura of the University of Texas at Austin to our continuing series of webinars.  Dr. Pierce-Shimomura, neurobiologist and parent of a child with Down syndrome, is conducting innovative research on Down syndrome and Alzheimer's disease using tiny worms to understand the neural degeneration that occurs with aging.  Listen online to his exciting perspective on cutting-edge research.

 

Scientific Advisory Board Annual Meeting

April 2012

At the heart of DSRTF's mission is the collaborative process, through which researchers share and build on their advances across multiple disciplines.  At the yearly meeting of our Scientific Advisory Board, this network of advisors convened to provide critical perspective, advice, and recommendations to the DSRTF Board of Directors.

 

World Down Syndrome Day

March 21, 2012

DSRTF celebrated the UN's official recognition of World Down Syndrome Day by participating in the "Building Our Future" conference alongside self-advocates, educators, and specialists in the field.  We offered a special webinar with noted researcher Dr. Roger Reeves of Johns Hopkins University.  And thanks to our supporters, we raised over $425,000 for Down syndrome cognition research!

 

February Webinar: Dr. William Mobley

February 28, 2012

Our monthly webinar series continued with a presentation by UCSD's Dr. William Mobley, featuring an engaging overview of current Down syndrome cognition research.

 

Party with a Purpose

December 17, 2011

The scene: A Chicago-area pub. The soundtrack: '60s rock tribute band The New Invaders. The people: Nearly 100 friends gathered in the spirit of giving. The reason: Celebrating the amazing potential of people with Down syndrome. This Christmastime event was conceived by a supporter who wanted to give her friends the gift of music, fun, and community. She asked in return that they give to her charity of choice — DSRTF. This wildly successful event raised $10,000 for cognition research. Thank you, friends, for your amazing generosity!

 

Hair MD Salon Cut-A-Thon for Down Syndrome- Shelbyville, MD- October 15, 2011

2nd Annual Ashley Rose Golf Classic- October 3, 2011

A Swing for Hope Golf Outing- October 3, 2011

6th Annual Romp for Research- Asphalt Green- New York City- October 2, 2011

Alexander's Angels 5th Annual Buddy Walk- Eisenhower Park, East Meadow- October 1, 2011

10th Annual DSRTF Charity Golf Tournament- September 11, 2011- Stow, MA

One eXtra Reason Research Rocks!!! Event August 27, 2011

Hula for Hope- Virginia- June 4, 2011

 

Down Syndrome Research and
Treatment Foundation

225 Cedar Hill Street, Suite 200  Marlborough, MA  01752
Phone: 508.630.2177
dsrtf@dsrtf.org

© 2012 Down Syndrome Research and Treatment Foundation. All Rights Reserved.