Race for Research Kickoff and DS Cognition Research Update: Charlotte, NC
November 18, 2013
An excited local crowd joined us as we kicked off planning for June 2014's inaugural Race for Research, a three-day road rally through North Carolina to raise funds for Ds cognition research, helmed by our Honorary Chair, second-generation NASCAR driver David Ragan! Our kickoff was followed by an engaging, accessible look at recent advances in Down syndrome cognition research, including ongoing clinical trials and potential future directions. Thank you to all who attended this free program hosted by the Down Syndrome Association of Greater Charlotte — we appreciated your help in getting revved up for research!
DS Cognition Research Update: Bay Area, CA
November 2, 2013
What's happening in the world of Ds cognition research? Our audience found out from some of the foremost researchers in the field when we were joined by Drs. Craig Garner, Craig Heller, and Ahmad Salehi, all of Stanford University, for this informative, accessible presentation. Thank you to our speakers, and to all who attended.
One Extra Reason to Live, Love, and Hope
November 2, 2013
This year marks the eighth annual SoCal benefit for DSRTF. This year the Harbor City gala event offered food, refreshments, casino games, and a silent auction — we gathered to meet UCSD's Dr. William Mobley, enjoy a rare viewing of a private car collection, and win prizes, all in support of research. Our thanks to everyone who joined us, and to the event's generous hosts.
October 26, 2013
Chicago's Goose Island Brewery was the site of this unforgettable night of fun and friendship, which featured live music, a silent auction, delicious appetizers, and, of course, cold craft beer, all in support of DSRTF. We were proud to honor Ds cognition research pioneer Dr. Roger Reeves, and to say hello to so many friends who are helping us fund futures that are made even brighter by the promise of Ds cognition research.
Romp for Research
October 13, 2013
This family fun day at New York City's Asphalt Green is one of DSRTF's most popular events. In its eighth year, the Romp offered families games, entertainment, food, friends, and camaraderie as we all came together to celebrate our loved ones and support cognition research! Thank you to the volunteers, attendees, and donors who keep research flying high!
DS Cognition Research Update: Long Island, NY
October 9, 2013
Plainview, Long Island, NY was the site of this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for DSRTF. Attendees heard directly from Dr. Harpold about DSRTF’s current research investments and the clinical trials now underway — thank you for attending!
A Swing for Hope
October 7, 2013
A Swing for Hope, a day on the links to benefit DSRTF, was a swinging success! Now in its fourth year, A Swing for Hope featured golf, refreshments, contests, auctions, a cocktail hour, and more. Thank you for joining us for this all-day affair to support cognition research — and for helping us drive towards our goal.
12th Annual DSRTF Golf Tournament
October 6, 2013
The International Golf Club & Resort in Bolton, MA was the site of this year's annual Boston-area golf outing to benefit DSRTF. In addition to an unforgettable fall day on the links, the tourney offered continental breakfast, lunch, awards, and an auction. We thank all our friends who showed up bright and early to help us roll out for research!
Alexander's Angels Buddy Walk 2013
October 5, 2013
Once again Alexander's Angels banded together for their annual Buddy Walk! 2013's Walk was their seventh yearly outing, with funds raised to fund local programs and services; promote Ds advocacy and awareness; and support Ds cognition research. Thank you to our friends who took us along for the walk!
Team Fede: Buddy Walk 2013
October 5, 2013
Vittoria Aiello and Massimiliano Albanese laced up and headed out in honor of their daughter, Federica, and will be donating the proceeds of their Buddy Walk to DSRTF! Thanks, Vittoria and Massimiliano — we appreciate every step you take to fund cognition research.
DS Cognition Research Update: Austin, TX
September 17, 2013
The campus of UT Austin was the setting for this informative session featuring a conversation with Dr. Michael Harpold, Chief Scientific Officer for DSRTF and Jon Pierce-Shimomura, Assistant Professor of Neurobiology at The University of Texas at Austin. Thank you to all who attended, making the evening such a success. View presentations and pictures from this enlightening event.
July 19-21, 2013
DSRTF participated in the 41st annual convention of the National Down Syndrome Congress in Denver, CO, and hosted New Possibilities in DS Research: DSRTF Works Deliver Improved Cognition for People with DS — thanks to the many who attended our session, and all those who stopped by our booth to say hello!
Let the Angels In
June 28-30, 2013
Dancer Juliet Dolan and DSRTF friend Alexander’s Angels presented a night of music and magic to support DS cognition research — Juliet, a recent graduate from Queens College, is donating all proceeds from this production, her first, to Alexander’s Angels — her sister Jillian, who has DS, was a guest performer. Thank you, Juliet, for this unforgettable night!
Hayes Mechanical Golf Outing
June 18, 2013
Chicago contracting company Hayes Mechanical presented its sixth annual Golf Outing to benefit DSRTF. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. We thank the entire team at Hayes for making this event such a success — and for your unflagging support of the research DSRTF funds.
Ashley Rose Golf Classic
June 10, 2013
The beautiful Bull Run Golf Club in Haymarket, VA was the setting for this tournament in honor of "awesome Ashley"! In its third year, this event included continental breakfast, complimentary beverages, and an awards dinner, as well as a silent auction, door prizes, and contests. We thank the Kannan family for another great year of supporting DS cognition research.
Down Syndrome Cognition Research Update
June 2, 2013
The campus of Stanford University was the setting for this free informational session featuring some of the researchers DSRTF supports, Dr. Craig Garner, Dr. Craig Heller, and Dr. Ahmad Salehi. We were proud to present this chance for you to hear directly from scientists in the field about their current projects and clinical trials now underway — and so pleased to meet all of you who attended. Thank you for joining us!
We Have Hope
June 1, 2013
Once again the Taylor family hosted this annual event in the Richmond, VA area in honor of their daughter, Hope. This year friends gathered for tapas, sangria, and dancing— thank you to the Taylors for making DSRTF part of your special night!
DS Cognition Research: A Mother's Perspective
May 31, 2013
This month our webinar gave a mother’s perspective on cognition research, featuring moms you can relate to: women who celebrate their children’s strengths, while realistically acknowledging the challenges they face. We were honored to be joined by Down Syndrome Education International's Professor Sue Buckley. Thank you to Professor Buckley, and to everyone who attended.
Drive for Downs
Scott LaMorte, father of six-year-old Emma, logged eight days on legendary Route 66, from Chicago to LA, running down the miles and collecting donations in support of cognition research. We thank him for taking DSRTF along for the ride!
April 27, 2013
Friends made beautiful music together at this Chicago-area benefit to support DSRTF. Young musicians wowed listeners at this charity concert in Wilmette, IL, in this evening of culture and camaraderie. Our sincere thanks to the Villalobos family, all who attended, and the gifted students who generously gave their talents and time to move cognition research forward!
Webinar: Introduction to Down Syndrome Cognition Research
March 21, 2013
In this special World Down Syndrome Day event, Dr. Michael Harpold of DSRTF and Roche's Dr. Omar Khwaja introduced the basics of cognition research, discussed current research initiatives, and reported on clinical trials now underway. This session offered an informative, accessible presentation appropriate for those new to the topic, and included audience questions answered as time allowed. View the webinar here.
Webinar: Dr. H. Craig Heller
January 29, 2013
Dr. Heller, an expert in the area of sleep and co-director of Stanford's Down Syndrome Research Center, joined us for our January webinar to discuss the roles that sleep and circadian rhythm may play in the cognitive impairment that occurs in people with DS, and described the potential of pentylenetetrazol (PTZ) to improve cognition. Watch his presentation now.
Webinar: Affiliate Roundtable
December 4, 2012
Leaders of affiliate groups around the country joined us for a roundtable discussion to offer an introduction to cognition research and DSRTF, and to give us the opportunity to hear the concerns and priorities of groups serving those with DS and their loved ones. Our thanks to each leader who participated — we're glad you took the time to get to know us.
First Annual Funding Futures Benefit
October 27, 2012
Chicago-area friends joined us for a fun filled evening complete with delicious food, great music, refreshing Goose Island craft brews, fabulous raffle prizes and friendship. This was an event to remember, all to support DSRTF. Thank you, friends and supporters, for your hard work and high spirits!
Webinar: Dr. Roger Reeves
October 16, 2012
In this special Down Syndrome Awareness Month presentation, Dr. Roger Reeves of Johns Hopkins gave his perspective on the current landscape of cognition research and the challenges and possibilities that lie ahead. Did you miss this collaboration between DSRTF and the National Down Syndrome Society (NDSS)? You can watch the session here.
Upside of Down Charity Golf Tournament
October 8, 2012
This inaugural event in Austin, TX presented by Upside of Down offered golf, lunch, dinner, drinks, and prizes -- all to support camp scholarships for people with Down syndrome and DSRTF’s research. Thank you to our friends in Texas for making us part of this successful event.
Romp for Research
October 7, 2012
Our New York Romp for Research was our seventh annual outing, and a great time was had by all! This full day of family fun at NYC's world-famous Asphalt Green featured food, entertainment, and games, and an amazing opportunity to come together to celebrate our loved ones with Down syndrome. Thank you all for being part of such a memorable day.
Swing for Hope
October 4, 2012
Contests, an auction, a raffle, cocktails, and dinner followed this crisp fall day on the golf course in Manhasset, NY, to further the cause of research. We're so glad you could join us, and grateful for your support.
National Association for Down Syndrome Conference: "Lunch and Learn" session
September 29, 2012
This noontime discussion presented by DSRTF covered current exciting advances in Down syndrome reseach, including Roche's ongoing clinical trials, as part of the annual NADS conference in Rosemont, IL. Thank you for joining us.
11th Annual Charity Golf Tournament
September 23, 2012
Friends and supporters joined us in Bolton, MA for a day on the links to benefit research, including a patio barbecue, an awards ceremony, and an exciting charity auction. Thanks for hitting the green in support of DSRTF!
One Extra Reason to Live, Love, Hope
August 25, 2012
The seventh annual One Extra Reason to Live, Love, Hope gala hosted by the South Bay Down Syndrome Association was an unforgettable evening of camaraderie and commitment as friends of DSRTF gathered to share cocktails, bid on auction items, and support the groundbreaking work we do in support of people with Down syndrome. Thank you to all who made the night memorable, and who continue to help us move research forward!
National Down Syndrome Congress Convention
July 19-22, 2012
Each year thousands of people come together at the NDSC's annual convention to talk with experts, connect with families, and share the successes and challenges of life with Down syndrome. DSRTF was there to meet you, say hello, and spread the excitement about the promising work we support. Thanks for stopping by our booth -- see you at the convention next year!
Hayes Mechanical Golf Outing
June 19, 2012
Chicago contracting company Hayes Mechanical presented its fifth annual Golf Outing to benefit DSRTF. Year after year, this flagship event keeps growing in popularity, with more than half a million dollars raised for Down syndrome cognition research. Thank you, Hayes employees, families, and friends for your continuing support!
We Have Hope
June 2, 2012
The Taylor family celebrated their daughter Hope's many abilities and accomplishments at their annual fundraiser for DSRTF: "a party full of people coming together for this, our most precious cause." Thank you, Jill and JT Taylor!
May Webinar: Dr. Jon Pierce-Shimomura
May 22, 2012
We were pleased to welcome Dr. Jon Pierce-Shimomura of the University of Texas at Austin to our continuing series of webinars. Dr. Pierce-Shimomura, neurobiologist and parent of a child with Down syndrome, is conducting innovative research on Down syndrome and Alzheimer's disease using tiny worms to understand the neural degeneration that occurs with aging. Listen online to his exciting perspective on cutting-edge research.
Scientific Advisory Board Annual Meeting
At the heart of DSRTF's mission is the collaborative process, through which researchers share and build on their advances across multiple disciplines. At the yearly meeting of our Scientific Advisory Board, this network of advisors convened to provide critical perspective, advice, and recommendations to the DSRTF Board of Directors.
World Down Syndrome Day
March 21, 2012
DSRTF celebrated the UN's official recognition of World Down Syndrome Day by participating in the "Building Our Future" conference alongside self-advocates, educators, and specialists in the field. We offered a special webinar with noted researcher Dr. Roger Reeves of Johns Hopkins University. And thanks to our supporters, we raised over $425,000 for Down syndrome cognition research!
February Webinar: Dr. William Mobley
February 28, 2012
Our monthly webinar series continued with a presentation by UCSD's Dr. William Mobley, featuring an engaging overview of current Down syndrome cognition research.
Party with a Purpose
December 17, 2011
The scene: A Chicago-area pub. The soundtrack: '60s rock tribute band The New Invaders. The people: Nearly 100 friends gathered in the spirit of giving. The reason: Celebrating the amazing potential of people with Down syndrome. This Christmastime event was conceived by a supporter who wanted to give her friends the gift of music, fun, and community. She asked in return that they give to her charity of choice — DSRTF. This wildly successful event raised $10,000 for cognition research. Thank you, friends, for your amazing generosity!
Hair MD Salon Cut-A-Thon for Down Syndrome- Shelbyville, MD- October 15, 2011
2nd Annual Ashley Rose Golf Classic- October 3, 2011
A Swing for Hope Golf Outing- October 3, 2011
6th Annual Romp for Research- Asphalt Green- New York City- October 2, 2011
Alexander's Angels 5th Annual Buddy Walk- Eisenhower Park, East Meadow- October 1, 2011
10th Annual DSRTF Charity Golf Tournament- September 11, 2011- Stow, MA
One eXtra Reason Research Rocks!!! Event August 27, 2011
Hula for Hope- Virginia- June 4, 2011